Living with Fragile X DVDs are now available.
You can order by clicking here. We appreciate your support.
September 2008
“Living with Fragile X” was a big hit at the International Fragile X Conference! The conference was held in St. Louis in July and we had an impressive turnout to view the documentary on the opening night. We were thrilled to hear from so many family members about how touched they were by the movie and how excited they were that we are trying to get the word out on a national level about fragile X syndrome.
On October 3rd, “Living with Fragile X” will be showcased at a fragile X conference in Birmingham, England.
The documentary has been submitted to Discovery Health, PBS’s POV program, and PBS’s Independent Lens program. We will post updates as they come to us.
January 2008
On January 12th, “Living with Fragile X” had its big-screen debut in Santa Cruz, California at the Rio Theatre. More than 200 people came out for the screening and the response was overwhelmingly positive. We held a Q&A after the screening featuring Dr. Randi Hagerman, Director of the M.I.N.D. Institute; Dr. Paul Hagerman, Molecular Biologist at U.C. Davis; Robby Miller, Executive
Director of the National Fragile X Foundation; Coleman Lyles, Director of Camphill Communities of California; Neal and Carolyn Robb, parents who appear in the documentary with their children; and the filmmakers, Kathy Elder and Greg Mishey. Most of the crowd stuck around and the panel fielded a wealth of
intelligent, insightful questions. Next steps: the overall goal is to get the documentary broadcast on national television. We plan to submit it to NOVA, Discovery Health and HBO in the
coming weeks.
Read the Santa Cruz Sentinel article about the documentary.
See the production still slide show, a collection of images that follows the making of the documentary.
Visit our YouTube channel.
Order the documentary.
We will continue to post news updates to this site, so please visit again soon.
We welcome your questions and comments about the documentary "Living with Fragile X". Please email us anytime at info@livingwithfragilex.com
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