* videos require Quicktime

Experts

Randi Hagerman M.D. (UC Davis) explains why she loves to work on Fragile X Syndrome.

Steve Warren Ph.D. (Emory University) discusses the connection Fragile X researchers have with patients.

Paul Hagerman M.D., Ph.D. (UC Davis) discusses how research into Fragile X syndrome helps to understand a variety of other neurological disorders.

Louise Gane M.S. (UC Davis) discusses the role of a genetic counselor.

Aimee Anido M.S., CGC (Emory University) compares Fragile X Syndrome to other genetic disorders. This is a web extra from the documentary "Living with Fragile X."

Steve Warren Ph.D. (Emory University) discusses the important role molecular testing plays in the diagnosis of Fragile X Syndrome.

Parents

Neal Robb reflects on the politics surrounding genetic research.

Marlena and Hilda Gutierrez talk about what is was like for Marlena to grow up with brothers who have Fragile X Syndrome.

Sali Farber talks about how doctors don't know enough about Fragile X.

Bucky Kahl comments on raising children with disabilities.

Trouble viewing the videos?   Visit our YouTube channel

Order the documentary.

We welcome your questions and comments about the documentary "Living with Fragile X". Please email us anytime at info@livingwithfragilex.com

Main menu